It seems some things are never simple for me these days…… Things have changed somewhat since publishing my previous story on my diagnosed radiation bladder cystitis and the hyperbaric treatment I was having to correct the problem. There has been a new diagnosis offered for the bleeding I was experiencing. To explain this issue I will describe the events that have taken place since my last article “Blood in the Urine and Radiation Cystitis Part 2.”
In my previous article I described graphically my hospitalisation with urine retention due to clotting. I deliberately did this so that people might have some understanding of what this condition may be like. Three weeks after I was released from that first hospital visit I again presented to the emergency department with the same symptoms and the dreaded catheter was inserted once more. This time my stay would be for a week before the bleeding subsided, so I got to experience the dance of the bladder spasm’s again.
It was during this second hospital visit that I had a conversation with a colleague I had met in the hyperbaric medical unit that would change the game plan a little. Our conversation began with a critical chat on, “How come the hospital didn’t perform another cystoscopy and cauterise the blood vessels responsible at the time.” Then my colleague recommended a certain urologist in Townsville and suggested I should get a referral for an appointment as a private patient. My second hospitalisation coincided with the end of my hyperbaric treatment and sadly it was presumed that the treatment had not been succesful for me.
A few days later I was able to consult with the recommended urologist in Townsville. He was very thorough and was able to access most of my medical records over the past two years. After an examination including a DRE he advised me to consider having a cystoscopy to evaluate the condition along with any cauterisation required. He also explained that it was his opinion that my bleeding problem could be from my prostate gland and not the bladder itself. He explained that the remains of the prostate gland after radiation treatment contains a gelatinous amount of dead cells and damaged blood vessels. This gelatinous material continues to enlarge and will slough off from time to time causing hematuria and clots in the urine. He would be able to make a definitive diagnosis during the cystoscopy.
And so it was……. After the procedure the urologist confirmed that while my bladder does indeed show evidence of radiation damage it was not the main cause of my troubles. The remains of the prostate gland was at the centre of the bleeding I had been experiencing. He cauterised the surface of the gland in the hope that this would be sufficient to correct the problem. Time will be the decider on the success of this procedure, if the bleeding recurs, the next plan is to go back in and scrape the gelatinous mass and remove it entirely back to the capsule, just like scraping out an orange.
It is now two weeks down the track since the latest procedure and cauterisations and I still feel pretty knocked about. I am experiencing urinary problems including more visits to the loo complete with urinary pain and mild bladder spasms from time to time. Some incontinence with urgency, pain and inflammation within the pubic area and to round it all out the UTI is back. The good news is that I have not experienced any bleeding so far and my new urologist claims that I should improve within the next week.
So there you have it……A bit of a long saga but I am happy to have presented it here in the hope that some other poor soul may benefit from my experience. It is said that every persons journey with cancer is different and I have to agree. This radiation damage voyage has led me through some horrible events and was looking like the condition might remain unresolved. All of a sudden a new path appeared out of the blue with a medical opinion that it just might be the remains of the prostate gland that is the problem. None of the previous doctors I had seen about the bleeding had mentioned other possibilities apart from problems with the bladder. Indeed the bladder may be an issue further down the track as it shows damage but for now perhaps the cauterisation of the prostate will let things settle for a while.
My cancer is still in remission but the side effects of my treatments continue to send me down some awful dry gullies since my diagnosis. A side effect of the hyperbaric treatment that I have been afflicted with is a visual degradation, where it seems like my eyes have been smeared with Vaseline and everything is out of focus, even glasses do not help. the doctors assure me that it is a rare occurrence and I should get over it in eight to twelve weeks. Returning to the more serious bleeding events, it is worth stating here, that the side effects of radiation bladder cystitis and radiation proctitis of the bowel occurs in a very low percentage of patients receiving radiation treatment in the pelvic region. However if you happen to be in the very low percentage I hope my story might be of benefit. In closing this article it has made me think about the decisions made when I was first diagnosed with prostate cancer. If the new diagnosis of bleeding from the prostate gland proves correct, then the question would be. Would I have benefited had I elected to have had surgery and removed the gland prior to radiation??? This will be a question I will put to the urologist on my next visit, but I have a feeling there will be no definitive answer.
Lee aka Popeye
I thought I had closed off the subject on haemorrhagic bladder cystitis and blood in the urine but recent events have led me to write this article. What I am about to describe is not a “Poor Me” event but an article I feel needs to be explored to inform those patients who may have to face the same situation as I am going through. This is a personal description of what it is like to have a massive bladder bleed with retention and bladder spasm’s.
As I have written in my past few posts I am undergoing hyperbaric oxygen treatment in an effort to heal my diagnosed bladder cystitis. However a few days ago I experienced a massive bleeding event resulting in a midnight dash to the Townsville Hospital Emergency Department.
I will start by trying to describe what it is like to experience a bladder spasm. If you have ever experienced a severe muscle cramp or witnessed a footballer suddenly collapsing in agony with a muscle cramp spasm you will have some idea of what this may be like. The difference however is the frequent amounts of spasm’s experienced by urine retention patients. Throughout my whole ordeal I was experiencing these attacks on a regular basis for two days and nights with the bowels joining in the chorus at times. Sleep was non-existent all through this period and on a pain level out of 10 it was a 15 every time. I felt like I was being disemboweled
My adventure began as a series of small bleeds during the evening suddenly increasing to urinary retention where I was unable to pass the clots. At the point at which I could not pass any urine or clots the bladder spasm’s began to wrack my lower pubic area and off to the emergency department I went. The emergency department were terrific and admitted me straight up and administered some pain killers and inserted a three-way foley catheter. (Having one of these catheter’s inserted and retrieved deserves an article in itself, however I will leave this for another time)
The next couple of days and nights have been seared into my memory as the worst distressing period of my life. They gave me some heavy pain-killer medication plus a drug (oxybutynin) to help minimise the spasm’s. These helped somewhat take the edge of the pain except during the height of a spasm which would last approx 30 seconds and then reliably return approx every 30 minutes. I found I could not lie down for long but was better able to handle the spasm’s when I was standing erect, so, standing I was for two days and nights. The catheter kept blocking with clots and the nurse had to constantly flush the catheter. sometimes I could clear it myself by jiggling, squeezing or adopting different stances to keep the flow going.
The bleeding finally stopped and I was released back out into the wild and back to my hyperbaric treatment. I am still left with the occasional mild spasm, a little incontinence and increased painful urination. The hyperbaric unit has been supportive and wish me to continue with treatment. They do not see this as a failure in my treatment as I am only half way through my sessions. They explained that the treatment is aimed at supplying oxygen to these blood vessels thus assisting in the healing. This healing effect will continue for a couple of months after completing my sessions. It could be possible I may relapse in the future but I can always have the treatment again at some point if needed.
Summarising these events I would like to say that those days and nights were the most painful, distressing, unhygienic, un-dignified and embarrassing moments in my life. In describing these events I have painted a bleak picture with little or no hints for those who may yet travel this path. Greg wanted this site to be warts and all and that is the reason I have submitted this article. It’s main aim is to at least warn those patients that this road may yet confront them in their cancer treatment travels and also to highlight that they are not alone, someone has been there before. Drink at least two litres of plain water daily and mind the foods you eat. They should be non acid forming and not spicy. Tea, coffee and alcohol should be modified or discontinued. The aim of the game is to reduce bladder irritants and flush the system with water.
I would like to publically thank the staff of the emergency department at Townsville General Hospital for holding my hand throughout this ordeal.
Lee aka Popeye
At long last I can finally put pen to paper and give readers an update on what has been happening with myself and my treatment. You may recall in a previous post that I revealed I was having some problems with radiation induced bladder cystitis and I would need to be treated in a hyperbaric chamber. Prior to the treatment I was instructed to have a colonoscopy just to check if there was any evidence of radiation proctitus affecting the bowel. Well guess what?…….. I have been diagnosed with both.
I previously explained that this type of radiation damage is rare these days, due to improvements in modern methods of directing radiation beams to tissue and organs. Approx 7 / 10% of patients will experience radiation damage to healthy tissue either in the short-term, (acute) or long-term (chronic). This damage to tissue can occur years after receiving radiation treatment and is difficult to heal.
Basically, radiation bladder cystitis and radiation proctitis is damage to the blood vessels surrounding the wall of the bladder and colon. The blood vessels rupture and bleed causing a degradation of quality of life and/or life threatening conditions as it progresses. These conditions do not respond well to drug treatment and show a limited response when the blood vessels are cauterised. Hyperbaric Oxygen Treatment is the gold standard for this condition with a cure rate of approx 80%.
I will not go into any further descriptions or prognosis on these two conditions, nor the technical science behind Hyperbaric Medicine. I have already written fairly extensively on the medical conditions in previous articles and I have included at the end of this post, links to articles of interest regarding Hyperbaric Medicine. What I will try to do, is give a personal account of my treatment so far in the chamber.
I arrived at the Townsville Hospital over a week ago and located the Hyperbaric Medicine unit in a back corridor where I met all the staff who are a tight-knit medical and technical unit operating the chamber for patients with all sorts of medical conditions, from radiation damage, to wounds not responding to normal medical treatment. Nearly all of these staff are recreational divers and are dedicated people.
Treatments vary from twenty to fifty daily treatments including weekends. There are two separate sessions a day, lasting for two hours each. I am to receive fifty treatments and have been allocated to the afternoon sessions. The chamber here in Townsville is rectangular and can hold 8 patients a session plus a nurse. On arrival, patients are required to change into “Party Clothes,” anti static coloured garments that are one size fits all, plus cute little colourful booties, nothing is taken into the chamber apart from a book or magazine. There is a television available that usually plays a movie if requested but the choices have to be, a movie that is no longer than two hours and has sub-titles because you cannot hear any audio due to the oxygen demand set up.
The session begins by pressurising the chamber to 140kps or approx equivalent to 14 meters,or in other words two and a bit atmospheres. This takes about 20 minutes to descend and you constantly need to keep equalising pressure in your ears, some drink water, others yawn and wiggle jaws and some hold noses and blow. When you get to pressure, a clear hood is placed over your head and you begin to breathe pure oxygen. I couldn’t help but be amused and smiled to myself as I did, that it reminded me of a Dr Who program complete with the Daleks “exterminate, exterminate.” There are two air breaks during the session, where the hoods are removed for five minutes and then the session ends as the pressure is gradually decreased taking approx 20 minutes to ascend with the hoods and oxygen in place.
This treatment is not invasive, nor does it create any side effects. I have read and heard some astounding things about the benefits of this treatment and as I look about at the staff and the long-term patients, I wonder about the glow of good healthy, youthful skin they all seem to possess……Could this be the fountain of youth????? The high pressure experienced forcing the pure oxygen into the bodies cells, reviving blood vessels and assisting with rebuilding neucrotic tissue and expelling waste……Mmmmmm …..Nice thought.
Time will be the judge for my condition but touch wood, I have not had a bleed since I began treatment, still I am looking forward to my fiftieth dive and going home at last.
Lee aka Popeye
I apologise to my readers for the long delay in setting down any new material on this website. There are quite a few reasons for this delay but it is largely a result of writers seizure….. I simply have not been inspired to sit down and create an article that may be of interest to readers. New inspiration has been hard to come by, as lately I seem to be overly concentrating on my personal trials and tribulations without considering the wider view of prostate cancer and its effects on patients and carers.
Recently I was sent the following interesting piece of information by a fellow sufferer and member of one of the prostate support groups that I belong to. Prostate cancer is the second most common cause of cancer death in Australian men after lung cancer. Current drugs used for treatment of prostate cancer don’t specifically target the cancer cell, hence the long list of side effects.
In the link provided below an Australian PhD researcher Alice Klein describes her work designing new prostate cancer drugs which only kill the cancer and leave other cells unaffected. This link will take you to an ABC radio broadcast on the “Science Show” plus an accessible printed transcript of Alice Klein’s speech.
I am not sure how long this link will remain active but I can guarantee that this talk on her research will be of interest to all cancer sufferers as researchers continue to seek new pathways in the fight against cancer. God speed Alice.
As for an update on myself…….. I will be heading off to Townsville very soon to undergo hyperbaric oxygen treatment for the radiation bladder cystitis. I am scheduled for a colonoscopy next monday to investigate if there is any additional radiation damage to the bowel area and the results of this procedure will affect the length of the treatment I will receive in Townsville.
I look forward to reporting on the hyperbaric treatment and the results, as I feel confident that my report my help others who are facing the same sort of side effects from radiation therapy and give them confidence in having these issues successfully dealt with.
Lee aka Popeye
Ok everyone here we go…..This article has been inspired by events that are evolving as I write this. I have had some symptoms lately that have been disturbing to me and my search for answers has been a little enlightening to say the least. I have been waiting for some sort of resolution so I could present my findings here to help others who may come along with a similar path to mine.
The treatments for prostate cancer and every mans journey is slightly different (How true is that statement.) After diagnosis and depending on the treatments one chooses, brings into play a multitude of possible side effects that impact on the quality of life of a patient. What I offer here is an insight into a possible side effect that I believe is not fully appreciated by those undertaking radiation treatment for prostate cancer. When I began to experience these side effects of radiation therapy I was astounded as to the repercussions that were possible in the events I am about to relate. I was also surprised at the amount of relevant information available on this issue when a person actually goes looking for these answers and information. So here for everyone’s interest is a run down on the possibility of contracting radiation bladder cystitis.
I have now been diagnosed with this complication after ongoing recurrent urinary infections and the development over the past six months of episodes of gross hematuria. At the very beginning I thought I was aware of the side effects and complications but I certainly was not fully aware of the complete implications that these may have on a patient. I have since correlated a fair amount of information on this subject and would like to share this here for future reference for any other unfortunate radiation patients faced with the same prognosis.
Radiation Cystitis is a rare complication of the bladder caused by treatment of radiation therapy to the pelvic region. Reports indicate it may occur in approx. 7% to 10% of prostate cancer patient’s undergoing this procedure (Guess who drew the short straw). The side effects of treatment can be immediate and acute or perhaps develop months or years after completion of treatment. In some cases radiation side effects can be resolved fairly easily but in other cases they may be more difficult to treat and this can have lasting effects on a patients quality of life and there is a possibility of mortality from urinary blockages causing kidney problems and a life threatening infection called urosepsis.
Modern radiotherapy techniques have improved the focus of the beams and can be modulated so that less radiation is delivered to the more sensitive areas around the prostate. This reduces the likelihood of long-term tissue damage but problems can still occur. Radiotherapy can damage the soft tissue and blood vessels lining the bowel or bladder and this reduces the blood supply to these areas so that when treatment is completed, these blood vessels and soft tissue do not have enough blood supply to support efficient healing causing necrosis.
In my case I developed recurring pelvic and urinary infections since my TURP procedure in 2012. I completed IMRT radiation treatment in December 2012 and my PSA remains at 0.02 as of today so things appear OK on the prostate cancer side. However for the past six months I have experienced some bleeding along with clots in my urine from time to time which culminated in February this year with a massive bleed. The event was very painful and distressing, as for several hours I continued to bleed and pass clots, some of which blocked my urethra until the pressure became strong enough to pass them through.
Last week after many previous delays I finally had a procedure called a cystoscopy, which diagnosed radiation induced bladder wall bleeding with multiple telangiectasia ( spider vein type blood vessels) noted on bladder wall. The urologist has now referred me to a radiation oncologist. .From my understanding the only real successful treatment available for this condition is treatment in a hyperbaric oxygen chamber
I have now outlined this subject from a first hand point of view and it now only needs me to follow this up after my next consultation with the radiation oncologist and any subsequent treatment. My lovely wife and carer has reminded me of the following and it is worth repeating here as I finish up this article.
After my prostate cancer diagnosis and regarding the decision-making process we had to make. We made our decision at that time based on advice from specialists and our own rushed but thorough learning curve of radiation coupled with ADT. We were aware of the radiation consequences just as we were aware of the surgical and ADT consequences but realistically way back then, we believe there was no other alternative. Today having come this far down the track and experiencing most of the side effects we read about then and now, we are now faced with this issue needing to be dealt with: BUT WE AGREE THAT WE WOULD STILL MAKE THE SAME TREATMENT DECISION TODAY.
I look forward to bringing an update to this forum on my ongoing treatment for this condition as it occurs.
Lee aka Popeye