GREG'S LEGACY

Specialising in the human experience of Living with prostate cancer – warts and all

Posts Tagged ‘ADT

Christmas Greetings for 2015

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Seasons Greetings

Seasons Greetings

Hello again to anyone out there who still visits this site and my very heartfelt best wishes to the world in general. MERRY CHRISTMAS to everyone and my wishes for a HAPPY FESTIVE SEASON to all people regardless of religious persuasions. May the politicians and the people of the world find some sanity and peace in 2016. 

As I grow older I have come to embrace this time of year emotionally. I use this sense of time and place to slow right down and do a stock-take of past life events. I give thanks to the universe and or my creator for the people close to me and those that have sadly left me behind. I give thanks for my home, the area where I live and the peace that I enjoy here. I give thanks for the skill of the surgeons, doctors and nurses that have given me extra time and an improvement in my quality of life. I am constantly amazed at the diversity of skills and capacities of mankind that surrounds us. I give thanks for the love, respect, understanding  and respect of my wife, my companion and carer 

I have not contributed an article here since May this year and the reason has simply been that I had nothing to report, I am doing OK for the moment. I am not a doctor and lack certain mental understanding of things medical, to gather technical stuff together to present here on this site. Besides there is a ton of technical information available on cancer, treatments and drugs that are presented by others more qualified than I.

At the very beginning of my illness I went seeking articles on the human personal side of cancer diagnosis and treatment. I found this site established by Greg and eventually was able to contribute articles myself. Greg wrote about his illness, treatments, mental anguish, treatment discoveries, general ups and downs from week to week. He also unveiled his personal life, family history and his private philosophy on life in general. The information Greg presented is still relevant today for those seeking a personal perspective on the effects of chronic illness. Like Greg, I also tried to write on a personal level describing my personal experiences with dealing with this cancer,  however I did try to include other areas of interest that I thought might appeal to readers.

Together Greg and I have attempted to bring a personal touch to such subjects as:

Cancer diagnosis and grading….. Treatment and decision making…….Cancer screening and primary treatments…….Effects of surgery, Radiation, Androgen Deprivation Therapy, Chemotherapy….Other alternative treatments…. Advances in treatments and research… Cancer progression……. The carers role….End of life preparations…….Palliative and Hospice Care….Cancer statistics…… Depression, suicide and Euthanasia…….Personal experiences with treatments when a primary treatment goes wrong…..A personal view of the meaning of life, the creator or god.

Since my life saving surgery in November 2014 there has not been too much else happening in my cancer world. I remain in remission for the moment, although my last PSA results showed a small increase. This increase in PSA was not significant enough to draw a conclusion, so my doctor and I are awaiting my next PSA result due in a couple of weeks. The result from this will determine if my cancer is still active somewhere or if I remain in remission. If the cancer has begun to progress my only option in that case will be to return to ADT treatment and then continue to monitor the PSA with further treatment decisions to be made along the path.

Farewell until 2016

Farewell until 2016

So until things become clearer for me or change dramatically, or I find an interesting subject to report here for readers, I will bid every-one goodbye for now and hope to return sometime in 2016.

Cheers

Lee aka Popeye.

 

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Remission………. Perhaps

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Here I may be

Here I may be

Hi everyone and I wonder who is out there still interested in what is happening to me. Since I last posted the article on keeping things in perspective I have been curious as to who is still reading my stuff and I hope I still have an audience out there. I have not received many comments lately but one I must admit gave me he shivers and I hope Kathy received my reply OK and perhaps I was able to help a little.

I have come to the conclusion with the help of my local GP in a heart to heart talk we had, to drop my attendance with my local urologist as I have lost faith with him. I have decided to  transfer my well being to my local GP as they can monitor my progress/decline just as well, and refer me to whoever if and when I may need to go see a specialist if things go pear shaped. I have had all the major treatments I can have apart from continuing ADT injections and that, along with the monitoring of my PSA can be achieved locally.

At the time of this article I can say that I have not felt this well for at least two years. Despite the ADT and side effects, I have not felt this energetic and interested in my life for some time. I have been mowing the lawn and weeding, I have been up and about and looking forward to continuing my renovations around my house and I have been tree lopping at the next door neighbours place and gardening for her as she attempts to sell her property. I have been out at my sons place west of Mackay helping him with renovations and I am looking to visit my daughter in Cairns. This is the stuff I used to be able to do and looked forward to doing and here I am once again able to get involved, and I am just so happy to have this opportunity.

I guess I feel like I am truly in REMISSION and I am grateful for the chance to enjoy this. Right now at this time and at this place I feel like the last twelve months have been a bad dream.  I have not been given the official diagnosis of remission by the doctors but I know deep inside that I feel like I have another chance and besides my PSA is where it should be. I also just feel so much better.

Unexpected Remission

Unexpected Remission

I do not know what the future holds and if this thing may possibly return, but right here and now I know I am normal. If things change for me along the track I will be happy to accept the fact, but right now I am just so grateful to have had this time of grace in my life. I was going to apologise to all of you for the lack of drama and interest in this article but then again…… I just feel so great I feel like to hell with it, so here is my latest article with no warts, just good news from how I feel right now.

Cheers Guys and Gals

Lee aka Popeye

Those Old Post Treatment Blues

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Also 23 types of PC

Also 23 types of PC

Well the songs are banging around in my brain like a bunch of old blues numbers creating an earworm. “Won’t you cry me a river,…….. cry me a river,……I cried a river over you” or “You must remember this, a kiss is still a kiss, a sigh is just a sigh,….The fundamental things apply,……….As time….. goes….. by.” Ah Play it again Sam.”

I had read about the mental anguish that can accompany a patient when nearly all primary treatment for prostate cancer is completed and life goes on. Seemingly, the only thing treatment wise, happening for the patient is a three monthly PSA test and more than likely a periodic injection for continuing ADT. However the lack of any major future medical goals provokes these blues attacks and for very understandable reasons.

It has taken me 12 months down the track to arrive at this point in my little journey. Now here I am all treated out, apart from continuing ADT and wondering where the hell I go from here. I have not seen my GP or Urologist for several months, I am in need of my next eligard injection which I fortunately have a script for (The last injection was given at the radiology clinic) and I am now back home released from the radiologists care. Where do I go from here ??

I have issues with my Urologist that I am not happy about and I was constantly thinking up excuses not to phone and make the appointment that I knew deep down I really should make. I feel like giving him a miss completely, but he is all my country town really has to offer a prostate cancer patient like me, as unfortunately the only other Urologist in town may have some issues with me. My last GP had fled from the area some 9 months ago but I do have a good option to see the doctor who owns the family practice. So into the GP I go and after a little chat he advises me to do the thing I really knew I had to do.

So there I was, three weeks later in the urologist waiting room clutching my 4week overdue eligard package. I had spent the previous couple of weeks worrying about the results of my PSA test and wondering if the numbers may have risen slightly. The question is always in the back of a prostate cancer patients mind, has the PSA gone up?? Has the cancer become castrate resistant and is on its merry way ??? There are no guarantees for any of the treatments in this game because given enough time all prostate cancer will progress despite ADT.

To a prostate cancer patient, life can seem to revolve around waiting outside a doctors door for the bad news you do not want to hear. You already know the cancer will get you in the end if you don’t die from something else first. However, onward you go, wishing for the good news every time the door opens and then back to managing your disease until the next time. Prior to this visit of mine to the Urologist I did consider shutting up shop completely, meaning no more ADT, no more Urologist, no more pathology and just get on with my life for as long as I could. To my mind this would be like walking away from the door and throwing off the chains of the side effects of the ADT drugs.

The flow chart

The flow chart

However, here I am and into his office I go…. Before I even sit down, he is reading the riot act to me about “I have a rule with all my cancer patients that they see me regularly and at least every three months in the worse case.” So I bent down, picked up my bag, turned and took a step toward the door. “What are you doing???” He asked. “…….I am leaving” I replied and then my wife and carer sprung into action to diffuse the situation . Nette let fly with news of our past 4 month stint and that we had kept his office up to date with progress, he on the other hand had sent us nothing. She then asked me to sit back down.

The rest of the session did not improve when I informed him that my wife and I were considering leaving private health insurance for financial reasons. This news was not received well from his side of the fence as he failed to conceive that a pensioner could not easily find $5000 per year for private health cover. His last word on the private health dilemma was to offer me the advice that I might consider having a subcapsular orchidectomy ( surgical castration ) to help out with future costs. I received my eligard injection and the good news that my PSA was still 0.04, he asked me to have a bone density test and PSA test and to make an appointment with his secretary for June.

I shook my head as I closed the door trying to work out how surgical castration may help or save me money in the long run. I am sitting here writing this post a week later and I am still pondering his suggestion and wondering what I will do with myself. Oh and by the way, I haven’t made the next appointment yet.

What goes around

What goes around

Lee aka Popeye

Progesterone Balances Testosterone

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***** This is a reblog of a post Greg published on 23.06.2012. In view of my latest article I thought I would publish this again to add further information for those interested in this subject.******

Lee aka Popeye

FACT: USP natural progesterone builds bone density (osteoporosis)

If you are or have been on Hormone Therapy (ADT). you WILL get osteoporosis – a chalking of the bones.  Eventually, you WILL have what they term “A Skeletal Event” usually a fracture of a hip bone.  I did.  If it does nothing else, Progesterone WILL prevent that happening. – Greg

My “quality of life” was stolen by the hormone therapy (Zoladex + Androcur).   I was one of those who reacted badly to ADT.

But, I got it back no thanks to my to my medical team.  Inside 2 days, Natural Progesterone Cream turned everything around giving me back my vitality and quality of life.

Dr. John Lee, M.D. (deceased),  the author of several books including What Your Doctor May Not Tell You About Menopause, has found that progesterone for men is one of the most effective treatments for prostate cancer. He had a series of patients who had metastatic prostate cancer who went into complete remission with natural progesterone. Progesterone appears to turn on the anti-cancer gene p53.

Progesterone is a hormone manufactured in the body from the steroid hormone pregnenolone. Progesterone is a precursor to most of the other steroid hormones, including cortisol, androstenedione, the estrogens and testosterone.

As a precursor, it looks for weaknesses in the hormone balance and converts into whatever is needed to bring the balance back.  Traditional ‘ PC hormone therapy’ or ADT tries to do the same by reducing the testosterone.  It does not consider the ‘hormone balance’ option.

Both men and women produce all of the sex hormones (testosterone, estrogen, HGH, progesterone, cortisol, etc,).  We just use them in different quantities and for different purposes.  As we get older and no longer need as much of any one of them, we slow down on the production and the balance is lost leading to many forms of ill health.  Men also become estrogen dominant and suffer the same problems that women have during menopause. Progesterone fixes that and is also actively involved in the building of bones.

Our doctors are generally unaware of progesterone to treat prostate cancer.  My doctors ignored my requests until they could offer no further options.  I had to get a prescription from a doctor and then have the 4% cream made by a blending pharmacist.  They certainly make it difficult to access, don’t they!  I use 1 cc or 1 gram (measured by supplied spoon) both morning and night.  that is the equivalent of around 80mg a day.

My GP was so amazed with the result, he has prescribed it to other PC patients.  He believes it is effective for any hormone related tumours.

If your quality of life is being effected by your ‘Gold Standard’ treatment, give it a go.  You will find out if it helps within a few days.

USP natural progesterone refers to the progesterone substance that is exactly the same hormone that is made by the human body. USP natural progesterone is not the same as the ‘progestins‘ that are synthetic versions of progesterone sold by the pharmaceutical companies.

Natural USP progesterone can provide many health benefits for both men and women (read our important article on natural progesterone for more information) , but only if it’s USP progesterone, the only type that’s bio-identical to the naturally occurring progesterone in your body.

I get my Natural Progesterone Cream 100g 4% from MJ Health & Beauty online.

Related Articles:

Greg’s Legacy Posts about Progesterone:

TESTOSTERONE Vs ESTROGEN WILL THE REAL CULPRIT PLEASE STAND UP

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We are nearly all the same

We are nearly all the same

My mentor Greg, some time last year had inadvertently stirred up an interest in me that began my latest quest, resulting in this particular post. Mind you, the search for information on this issue still goes on for me and the more I discover  the more “Holy Smoke what if”  moments I find.

Greg had written much and lectured me a great deal on the benefits of progesterone and in particular, his use of a daily application of progesterone cream. In Greg’s words “it was sensational and made such a great difference to his sense of wellbeing, Progesterone balances the hormones in the human body thus restoring metabolic function.”

Progesterone cream is only available on prescription here in Australia and is normally prescribed for menopausal women. I remember Greg telling me he was lucky that his GP would prescribe it for him being a male. So this is where my interest began that has resulted in the following article for consideration by anyone interested. I have included some links for further information at the end of this post and I can highly recommend the link for Dr John Lee and his booklet on hormone balance for men.

Men with advanced prostate cancer will understand the nuts and bolts of ADT (Androgen Deprivation Treatment) and the fact that ADT shuts down the production of testosterone in the testes to castration levels. This treatment is one of the three primary treatments offered men diagnosed with prostate cancer, the others being surgery, radiation or a combination of these.

At the current time medical opinion believes that the prostate cancer feeds off testosterone hence the use of ADT therapy to cut out the production of testosterone. Thus you can conclude that medical opinion believes that testosterone drives prostate cancer. Almost all men being treated with ADT will at some time find their prostate cancer becomes castrate resistant and will then continue to progress despite ADT.

Hormone balance for men

Hormone balance for men

Hormone balance in men and women is critical for optimum health and both men and women share three main hormones in differing quantities. Testosterone, (men)Progesterone, (the balancer) and Estrogen (female).  It has long been known that an excess or imbalance of estrogen can cause breast cancer in women, however consider the following argument in the case of prostate cancer.

Prostate cancer occurs mostly in older men with low levels of testosterone and low levels of progesterone. However estrogen levels in the form of estradiol rise and dominate in older men. The estrogen increases in the fat of overweight older men by the conversion of testosterone into the estrogens. Life style also contributes to the manufacture of estrogens in men by the overuse of alcohol, smoking, diet, pollution, the use of plastics for cooking and drinking and shift work (sleep disturbance patterns).

So are we on the right track in our fight against prostate cancer??????? There is a surprising  amount of studies and information available on the role of estrogen in prostate cancer and further research happening but you really have to go looking for it.

I'm alright Jack

I’m alright Jack

It appears to me that there is not much difference between men and women, just a different percentage of the same hormones. I think the Chinese hit the nail on the head with the concept of Yin and Yang. Same with the hormones, testosterone and estrogen, Yin and Yang and is progesterone the juggler???? And could it really be that estrogen might be the culprit in prostate cancer not testosterone????? perhaps we have been looking in all the wrong places!!

 

Lee aka Popeye

Further Reading

http://www.organicsilica.biz/research/8006.pdf ( *******Dr John Lee Booklet on Hormone Balance In Men Recommended reading )

http://www.ncbi.nlm.nih.gov/pubmed/19649507

http://www.ncbi.nlm.nih.gov/pubmed/19011298

http://www.ncbi.nlm.nih.gov/pubmed/17983895

http://www.ncbi.nlm.nih.gov/pubmed/18547385

http://health.howstuffworks.com/sexual-health/male-reproductive-system/testosterone-and-estrogen-balance-in-men.htm

http://esciencenews.com/articles/2008/05/27/estrogen.helps.drive.distinct.aggressive.form.prostate.cancer

http://www.oncoveterinaria.com.ar/contenidos/archivos/file/Julio/Role%20of%20estrogens%20in%20development%20of%20prostate%20cancer%5B1%5D..pdf

http://www.johnleemd.com/store/more_mens_hormones.html

Four Monthly Prostate Cancer Review Negatives and Positives

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Christmases past

Negativity takes over

I have just attended my urologists practice last friday afternoon on a scheduled review appointment and I was in a foul negative mood. My mood must have affected both my doctor and my wife as it was as if a dark cloud had descended on the meeting and I suddenly became a target for both of them.

It has been almost four months since my diagnosis and I am due for my next hormone implant injection come the 17th July. So with nothing better to offer as a post I decided to allow these two themes to guide me through and weigh up the negatives and the positives as they have happened to me over these past four months and throw them out there and see what comments I might stir up.

To be fair to my wife and urologist and to explain to everyone up front, I felt so bad after fridays meeting with my doctor that I emailed him an extended apology that evening and spent the next couple of days trying to make it up to my wife. To my urologists credit the apology was accepted without any problems and my dark mood on the day was mellowed by the doctors explanations to my problems and the ghost of Andy Ripley looking over my shoulder and whispering in my ear “Read my poem again you idiot.”

As a lead up into my dark mood on the friday I had spent the last eight weeks since my TURP procedure with  typical symptoms that had not fully resolved since the procedure. In fact I was collecting more symptoms along the way. The bleeding and purging of prostate material had continued and I was still experiencing pain on urination particularly throughout the daylight hours. I had developed stiffness and pain within the pelvic region and thighs. I had developed off and on chills and fever and an inability to stabilise my body temperature from time to time. My main ADT side affects of tiredness and heavy breathing were still with me. So I was getting a little worried. I had dark thoughts that these symptoms were possibly a result of the cancer extending itself subtly throughout.

As I began to unveil my diagnosis of my fears my doctor told me to drop anchor for a minute and presented me with the medical facts of my rotten position and the deepening symptoms I was experiencing. He explained with diagrams what he had done to the prostate during the TURP procedure and the fact that most of the tumour had been removed leaving behind an empty prostate sac that has two saggy edges near the bladder. My problem with pain and shut off while urinating throughout the day was because the bladder was not filling to acceptable levels and when trying to urinate the two edges of the prostate sac would flap together causing a shut down with associated pain. During the hours of darkness the bladder would fill sufficiently for the pressure to be such that this would not occur hence no pain throughout the evening. In time the remains of the prostate sac will shrivel and will not cause any problems. My other worsening symptoms are being caused by bacterial prostatitis which is being treated by ongoing antibiotics. He showed me in my pathology results with my urine samples that my leukocytes had risen from less than 10 to over 1000. This indicates a massive lot of crud still to be expelled from my urinary system.

My doctor then went on to advise that my latest PSA test was 0.01 so my prostate cancer at the moment wherever it happens to be within or without the remains of my prostate gland was not going anywhere for the moment. He reminded me that we have one shot at stopping this thing and it is with ADT combined with HDR Brachytherapy and External Beam Radiology. But I have to become symptom free before I start further treatment. At this stage it could be late August/September before we continue.

My other negative views which I have expressed in the past and did again at this meeting upset my doctor and my wife to the point where they were challenging my logic. I will explain these here as I said at the begining I would look at both the negatives and the positives according to my understanding.

Balancing the prospects

Proper Balance Needed

In the case for the negatives. I have almost reached the age of 65 years and have led a great life. No one lives for ever, we all have to head off this planet sometime. I don’t fear death but I do fear a long prolonged down hill slide to death. I do not wish to prolong this type of degredation for my family. So for me 65 is a pretty good innings, a lot of my friends and family were not so fortunate. So in good faith I am ready to declare my innings but not so my urologist and my good wife and I might add  bloody Andy Ripley.

For the positives and to be fair here it could be said (and was actually stated by the urologist) that from my initial diagnosis and cancer grading of gleason 9 that this prostate cancer had most likely started within me some 10 years or more before it became symptomatic. That would mean that with proper screening I could have been diagnosed with prostate cancer at the age of 54. Now if that had of happened through early screening I may not have been writing this post as this thing may have been nipped in the bud way back then when it was less agressive and easily cured. There was no way I would have been happy to leave this planet then. I was still a young and vibrant man of 54 with the world at my feet at the time.

The next positive I confronted was the ghost I uncovered in my last post and was really the reason I apologised to my urologist. I couldnt get the spirit of the poem written by Andy Ripley out of my head and it is worth repeating here.

Dare We Hope? We Dare

Can We Hope? We Can

Should We Hope? We Must.

We must, because to do otherwise is to waste the most

precious of gifts, given so freely by God to all of us.

So when we do die,it will be with hope and it will be

easy and our hearts will not be broken.

Andy Ripley 2007

So here I am feeling pretty ordinary. My life since late January this year has gone down the drain. My expectations of any real future are on hold. I now need a pad in my jocks to contain small accidents. It looks like any hope for a continuation of a satisfying sex life has long since gone out the window. How my wife really feels about this is really unknown to me although she has stated that it is not a real issue for her ( I am not sure how to really take that). My best mate and spouse for forty years now has to share, care and continue to love this poor old sod for better or for worse. A real positive for us is the fact that at the moment and for the past four months our relationship has expanded considerably. Being straight up with each other and being satisfied with a hug and holding hands is sustaining us through this time. I pray this will continue. My mental and physical abilities seem to have flown out the window in the case of ever being able to return to any previous work positions and responsibilities that I once took pride in. These abilities are now gone from my reach.

So here I am stuck with a bloody great spiritual poem, an inspirational story about a man who wrote it. A urologist who will not let go and refuses to concede defeat. This man is almost spiritually revered in my home town of Mackay and whose reputation is beyond repute. I am also stuck with a family including my wife who I know loves me and wants our life to continue together. My son does not want to lose me nor does my daughter. The grandkids mostly the young ones are not really sure what is going on. My special grandson Jesse who is seventeen is a different matter. His medical condition and history is a complete unknown story on its own to the world and a modern miracle that he has survived. He and I have a special bond and I am priviliged to have been his friend and mentor throughout a huge part of our lives together.

So, as from this day I have committed to a positive attitude for the next few months. I will turn up with a smile and a shes right mate attitude for the next few months. I will commit to the HDR Brachytherapy and External beam radiology when it is deemed that I am fit enough to endure the treatment. However I reserve the right to make new decisions after these events depending on how it all turns out.

Positives and negatives

Positives and Negatives

Regards

Lee aka Popeye

I must submit some popeye photos of me taken some years ago. Please remind me sometime?

Related Articles

https://kingvalley.wordpress.com/2012/06/21/an-update-on-my-recovery-from-the-turp-procedure/

https://kingvalley.wordpress.com/2012/06/21/an-update-on-my-recovery-from-the-turp-procedure/

A T.U.R.P Experience For Anyone Interested

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Lee TURP Recovery

Its Still Here

Transurethral Resection of the prostate –  Or TURP as it is better known, is a common procedure performed by urologists to improve urinary symptoms that occur as a result of an enlarged prostate restricting the urethra.

In commoners English, it is better known as a RE-BORE (YouTube) and since my latest little adventure, this  is a much more accurate description of the procedure.

For anyone about to undergo this procedure and anxious about it, I can offer the following first hand account of my experience and a few tips that might help. Now how do I start, lets see.

The procedure takes about an hour to 1.5 hours to complete. I was given a mild sedative and an epidural anesthetic and admit to being stressed about being awake during the procedure never having an epidural before.  I needn’t have worried, the epidural was administered with no real drama and the mild sedative had me in the clouds a bit in any case.

During the re-bore I had a sheet between myself and the surgeon so I was not able to see a lot just a bit of an outline on the sheet caused by the backlighting behind the surgeon. It was a little like making a shadow rabbit on a sheet like we did when I was a kid.  Mate I was thinking that this was a breeze, I could only feel a bit of pulling and tugging and no pain at all until finally it was all over. It was only when they were unloading me across to another mobile bed to go to the ward, that I fully appreciated how weird the epidural was.  I had no sensation whatever from the waist down and could not move anything try as I might. This effect was to last approx 2 more hours until slowly restoring feeling back to normal.  I can now appreciate a little on what paraplegia might be like.

The next couple of days recovering were pretty ordinary, with a three way catheter complete with pressure ball hanging off the end of what used to be my dangly bit. (since ADT and this latest bit of treatment it has taken refuge up inside my abdomen with just its head sticking out from time to time looking for an escape) I can attest to the catheter being uncomfortable for its duration and at times it was painful, so much so I was taking pain killers from time to time.  After the procedure and up until the removal of the catheter the bladder is constantly being flushed out by saline bags set on a drip through the three way catheter.

The patient doesn’t feel anything with the flushing it just goes on and out into a bag which is emptied by the nurses regularly and is monitored for blood and blood clots. Mine was pretty clean for most of this time and I think myself lucky.  The hour was approaching when they were to take the god awful catheter out, in my case at midnight on the third night.  Oh, my god it sounds like a celebration (New Years Eve) and I can tell you I was really looking forward to getting rid of that thing, it was driving me insane, it felt like a half inch garden hose, for the sake of Auld Lang Syne.

In the early evening Greg happened to ring to find out how I was getting on and offered the following bits of information. 1) the catheter coming out doesn’t hurt much. 2) the nurses will want you to pee into a bottle a few times after the catheter comes out.  This will hurt and my only advice to you is to push the bottle up into your groin hard enough to create a greater pain which will help.  Well he had one out of two right.  For me the catheter coming out was not a pleasant experience, I felt like I was giving birth to an alien, the top of my head felt like it was getting sucked through but the relief was immense when it was over.  The peeing in the bottle was, as Greg had forewarned and I was grateful for his advice, and as I discovered there is quite a lot of blood and clots in the peeing events over the next few hours, this is normal.

Me checking the tide level

Me checking the tide level

Some Tips for those about to rock.

Take (or purchase ) loose fitting boxer type pyjama pants. (at least 4 pair) and some clean T shirts. These were my pyjamas during my stay, underpants don’t come into it until the catheter comes out.

Bring some pads or pant type pads with you. these will be needed after the catheter is out along with underpants to stabilize the pads. There is quite a bit of blood and clots coming out for a few hours and the pads will help here.  Little peeing accidents are normal in the first few hours and the pads will help here also. The nurses were only supplying me as I was able to ask but sometimes the nurse would not be available for a few minutes and I needed a change straight away so I had my own supply brought in.

Make sure you give yourself a short haircut down below before having the procedure it will give you many advantages. I was not offered this treatment on admission and during the next few days I rued the fact I did not do it myself.   There is ongoing leakage of stuff happening all the time around the section where the catheter enters the uretha and when the catheter finally comes out there is some blood and clot material exiting while peeing.   The poor old dangly bit gets lost among the hairs and they in turn end up glued to said appendage creating some painfull adjustments to be made and hindering good hygene.

Be better prepared than I was by practising the pelvic floor exercises prior to having the procedure done.

Now that this is all over I can advise, that to me it has been a godsend in that I now have an unrestricted flow for the first time in months. There is still a little pain but way better than it was. I am still up a few times in the evening but it is no longer the ordeal it used to be. There is still a control problem happening but I feel this will improve over time. All in all I am glad that the TURP has been successfully completed.

Written by Lee

14 May 2012 at 5:58 am