GREG'S LEGACY

Specialising in the human experience of Living with prostate cancer – warts and all

PALLIATIVE CARE – you don’t have to be dying

with 3 comments


As I read personal stories about prostate cancer, I am surprised at the number of patients with no holistic approach to their treatment.  Most think Palliative Care is just for those about to die.  That is not the case.

Back in 2008, when I was first diagnosed, my daughter contacted Palliative Care who told her they are there for those with a life threatening illness –  just like her Dad with prostate cancer.

You and your family qualify too and I urge you to make contact with them.

You don’t have to be on your death bed.

Palliative Care has been the core of my treatment plan and have connected me with all the other medical and social services that are available.  They make sure everyone is on the same page.

With the side effects of treatment, you can’t do it by yourself. Your local doctor is too busy to do it for you. Your specialist isn’t interested in you – only your tumours. So who else can you turn to?

Palliative Care practiceHolistic Medicine looking after the medical, the psychological and the social impacts of your illness.   They can help co-ordinate your prostate cancer management, support your wife/carer and help you maintain a good quality of life.

Palliative Care have provided all the equipment needs that I have including mobility devices (wheel chair, walker, etc) as well as modifying my bathroom and toilet installing wall rails and a hand held shower head so that, when I need it, I can be showered by Pauline or a District Nurse.

I am visited twice a week by a District Nurse whose role it is to supervise my journey and to get whatever assistance I need.  This is where you get the hands on supervision.

Amongst their services, Palliative Care will also look after the Carer providing respite when needed.  They also connected us with Human Services who provided a washing machine free of charge and the Villa Maria Society who helped financially when we were flooded out.

So, why wouldn’t you contact Palliative Care. Just do it.

If you don’t, it might mean you are still in denial.

Because we are pensioners, none of this has cost us anything.  I don’t know what the costings might be or if there are costs if you are not a pensioner.

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Written by Greg Naylor

31 July 2012 at 11:58 am

3 Responses

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  1. Greg, this is some very useful information. My uncle passed last year after a long prostate cancer battle and we only knew of palliative care at the end. Will pass some of this information on. Thanks.

    Cassy

    1 August 2012 at 10:32 am

  2. Greg: Its Lee. Just letting you know in print that I have taken your point. I will be contacting palliative care very soon here in my home town. Another good article from you and perhaps a little pointed to people like me. I dont think I am in denial, am I??? Perhaps?Naaw! couldnt be could I??? I will be in touch and let you know how I get on.
    Lee aka Popeye

    Lee Gallagher

    4 August 2012 at 10:22 pm

    • Just passing on what I have learned – and yes – it was pointed at people like you. Take a look at the comment above. They only found out about Palliative Care at the end. As for denial, at least you have a chance to burn the bugger out with Brachytherapy. No time for denial, mate – just getting it sorted out is all that matters

      Greg Naylor

      4 August 2012 at 10:41 pm


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