GREG'S LEGACY

Specialising in the human experience of Living with prostate cancer – warts and all

One week down – rest of my life to go

with 5 comments


Click image for the Index of Greg's cancer journey

I have been using progesterone cream for a week now and life only gets better.  

A few days before starting this regime, I had two of the worst nights on record.  They were so bad, I really wanted it all to end.  In fact, I was terrified of going to bed not knowing what the night would bring.  Every morning was horrific with so much pain, phlegm discharge, gasping for breath and dry retching that I was sometimes incapable of taking my liquid morphine life support.  It took about two hours for the pain and distress to ease.  That left me with about five hours of relative comfort before the demon took me over again around dinner time.  Truly, there is no quality of life in that!

Compare the difference.

With a full night sleep (up to 13 hours), I wake up wet and have to change my clothes – but I feel fine.  Whilst there is a light nagging pain in my pelvic girdle (where the cancer has metasticied into the bones), it does not require any analgesics apart from panadol.  My appetite has returned and I have a coffee and toast to start the day off.  Think about it! I have given up three meals a day of morphine so don’t tell me this is a placebo effect.  The progesterone is really working.

I have discussed this treatment with two doctors both of whom are not surprised at the results – only that it works with men as well as women.  Progesterone is the main tool used by doctors to treat hormone imbalance in women to prevent osteoporosis.   When asked why they don’t promote the use of progesterone in men, the response is that they cannot recommend it as it has not been through the formal clinical trial regime carried out by the pharmaceutical companies (there is no money in it for them).

When we are looking for alternate treatments we must take that into account and ask our doctors if they have had any patients who appear to have benefited from such treatments.  That should get them around their ethical/professional qualms of making a non-traditional recommendations.  I stress however, you have to ask … they will not volunteer the information.

As we get older, both men and women suffer from hormone imbalance and prostate disorders are indeed a result of that imbalance.  Have you ever noticed that in really old people, women tend to look more like men whilst men tend to look more like women … hormones at work.

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Written by Greg Naylor

13 September 2010 at 11:44 pm

5 Responses

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  1. My Dad has female hormone implants Greg and his PSA went from 18 to 4. Bugger the formal trials – his GP suggested it so obviously it’s known about and what is there to lose?

    I’m really glad it’s working for you.

    Rox

    4 October 2010 at 4:36 pm

    • Hi Rox. That sounds like he is using Zoladex implants every three months. That is the treatment that has now failed for me. Zoladex affects different men in many ways – I was a poor candidate as it destroyed my quality of life. My PSA is now consistently going up – currently 75 – under the use of the Zolodex implant. Even though the failure of the implant means the end is now closer, I am glad to see the back end of it and the damage it has caused me.

      If your dad wakes up in distress and requires any breakthrough medication, PLEASE tell him about the way progesterone cream has turned my quality of life around. You have my email address. If you need more info write or phone me.

      Greg Naylor

      9 October 2010 at 10:32 am

  2. DEAR GREG IF I HEAR YOU MENTION THAT THE END IS CLOSER ONE MORE TIME I WILL COME DOWN AND PUNCH YOU IN THE NOSE. I HAD A FRIEND WHO LIVED ON THAT LINE FOR 20 YEARS AND SAID GOODBYE TO US EVERY FAMILY CHRISTMAS FOR THE WHOLE 20 OF THEM, HE WAS A VERY SAD PERSON THE WHOLE TIME, you are so full of life and knowledge.
    THE REST OF YOUR LIFE IS AHEAD OF YOU, THE BEST OF YOUR LIFE IS AHEAD OF YOU, AND PEOPLE LOVE AND CARE FOR YOU HEAPS, SO DON’T STRESS US ALL. WE ALL GET OLD AND THE BONES FAIL US, BUT WE HAVE THE MOST BEAUTIFUL FAMILIES AROUND US WHO DO WANT YOU TO STAY ALIVE, AND LOOK AT YOU — YOU HAVE!!!!!!! Sorry for yelling D

    Dianne

    18 October 2010 at 12:10 pm

  3. Diane, Greg can tell me “the end is near” as much as he likes. And if he keeps saying that for the next 20 years I will not yell at him. It’s his journey, and he has been magnaminous and graceful enough to share it with us. If it lasts 20 years then all the better, Go Greg (but “not go”, Collingwood).

    Ray Dixon

    19 October 2010 at 7:33 pm

    • Ray, thank you for jumping to my defence. When I read Dianne’s post, I was down at the time, so I simply turned off my hearing aids so that I didn’t have to listen.

      However, Dianne has the right to shout whenever she likes. She is a very dear friend – a lady who has been fighting lymphoma for about 15 years and in spite of the chemotherapy, bone marrow transplants and everything in between, she took the time to help get me through the last two and a half years. Dianne is the lady who put me on to the lactoferrin and the bovine cartilage that brought me to remission over a year ago. Maybe, she was having an off day or maybe she is so astute that she sees something I do not.

      I am indeed privileged to have both friends like Dianne who are prepared to yell at me and friends like you who are prepared to come to my defence.

      Greg Naylor

      20 October 2010 at 10:14 am


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