GREG'S LEGACY

Specialising in the human experience of Living with prostate cancer – warts and all

When the hormone treatment fails

with 5 comments


Click image to read Border Mail article ...

Click image for Border Mail background story ...

Weekly update letter

Dear family and friends

Since first being diagnosed, I have had a need to know more about the disease, about treatments and about the process of dying.

Last week, I discussed the futility of clinical trials and the fact that the most up to date accepted treatments neither increase lifespan nor improve the quality of life. This week, my ongoing web research exposed the following gem:

“When a patient is found to have a tumor, the only thing the doctor discusses with that patient is what he intends to do about the tumor. If a patient with a tumor is receiving radiation or chemotherapy, the only question that is asked is, “How is the tumor doing?” No one ever asks how the patient is doing. In my medical training, I remember well seeing patients who were getting radiation and/or chemotherapy. The tumor would get smaller and smaller, but the patient would be getting sicker and sicker. At autopsy we would hear, “Isn’t that marvelous! The tumor is gone!” Yes, it was, but so was the patient. How many millions of times are we going to have to repeat these scenarios before we realize that we are treating the wrong thing?

Philip Binzel, M.D., Alive and Well, Chapter 14

Well, that pulled me up with a start as I realised that he was right. Conventional medicine is totally focused on the destruction of the tumor with side effects that attack the bone density, the respiratory system, the immune system and anything else that gets in the way.
In my case, the cancer is so far advanced, surgery is not an option, whilst radiation and chemotherapy are only useful in pain management. Neither will increase my survival time. There is nothing on offer better than the particular hormone therapy that I am on. Once that becomes ineffective, all I have on offer is pain management.  At that time, any treatments offered will need to either make me live longer or improve my quality of life.

Most alternate therapies are not limited to the destruction of the tumor, they also try to enhance the overall health of the body effectively buying time to work on destroying the tumor by building the immune system and regulating the proper functioning of the body’s organs.

Consequently, my research is now preparing for the day when they tell me the hormone treatment is over.  I intend to be ready to switch immediately to the best alternate therapy my research can find.

Anyhow, back in the real world, I am doing OK.  The pain management is working a treat and I am getting through the nights without any drama. I am looking forward to the weather improving enough for me to get out into the vegie garden.  At the moment, the lack of body temperature control restricts my outdoor activities to about ten minutes.  Physically, I am still struggling with a barrow load of wood but that should improve when I can get outside again.

Regards
Greg

Advertisements

Written by Greg Naylor

23 August 2008 at 12:00 am

5 Responses

Subscribe to comments with RSS.

  1. […] Emaxhealth | Daily Heath News and Articles wrote an interesting post today onHere’s a quick excerptWeekly update letter Dear family and friends Since first being diagnosed, I have had a need to know more about the disease, about treatments and about the process of dying. Last week, I discussed the futility of clinical trials and the fact that the most up to date accepted treatments neither increase lifespan nor improve the quality of […] […]

  2. Good to hear you’re feeling a little better, Greg. Are we still on for next Saturday’s blogger bash at Milawa? I’m up for it. I’ve had a good idea too. I think we should each take along a topic of discussion and record the varying views & responses. Then we can blog about it.

    raydixon

    23 August 2008 at 6:28 pm

  3. I’m up for it too. Tell the others Ray. Your idea sounds good. I’ll have to try and think of something – yoyu know, the brain has slowed down a bit – but I’m sure I’ll manage. It sounds like an in-person MeMe to me

    Greg Naylor

    23 August 2008 at 7:12 pm

  4. Yes, Greg, good to see you being able to cope. Keep up the positive outlook.

    jr

    23 August 2008 at 8:33 pm

  5. I’m also glad to hear you’re feeling better Greg. I guess it should be warming up down there as September rolls around and you’ll be able to start cultivating the veggies.
    I was interested in your piece about alternative therapies and am keen to see the results of your research. In the meantime here are some links that I discovered about good nutrition that you might find useful:
    Low Fat

    http://www.ncbi.nlm.nih.gov/pubmed/7545759?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DiscoveryPanel.Pubmed_Discovery_RA&linkpos=4&log$=relatedarticles&logdbfrom=pubmed

    Rye Bran

    http://www.ncbi.nlm.nih.gov/pubmed/10679760?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DiscoveryPanel.Pubmed_Discovery_RA&linkpos=3&log$=relatedarticles&logdbfrom=pubmed

    http://www.ebmonline.org/cgi/content/abstract/230/3/217

    Red Wine

    http://cat.inist.fr/?aModele=afficheN&cpsidt=15247919

    http://www.cancer.gov/newscenter/pressreleases/ProstateGrapeMuscadine

    http://www.cancer.gov/cancertopics/factsheet/red-wine-and-cancer-prevention

    Tomatoes

    http://www.sciencedaily.com/releases/2007/01/070115215454.htm

    http://www.sciencedaily.com/releases/2008/05/080529091118.htm

    On another note, I wonder if you have followed the story of Leroy Sievers – possibly the most well respected ‘cancer blogger’ here in the US. He passed away recently after a long struggle with colon cancer – but his weekly blog posts (and podcasts) over the course of his illness are inspirational. The following link covers his basic story and you can link to his blog from there. I’ll be interested to hear what you think.
    http://abcnews.go.com/WN/PersonOfWeek/story?id=5636872&page=1

    Have a good week Greg,

    Peter

    pejolido

    24 August 2008 at 12:43 pm


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: